Tuesday, 22 March 2011

Ray's birthday

It’s Raymond’s birthday today and as well as cards he had messages from France and Australia.  He seems pleased with all his presents and it is a bright sunny day.  I know he loves having a birthday in spring because it is such a lovely season.

I wasn’t feeling well in the night and Ray had to help me out of the bath this morning and I continued to feel unwell during the first part of the morning but then suddenly seemed to brighten up and stopped feeling sick.  I was so relieved as we’d planned to go out for lunch.  I had my blood taken and then we went down to Gunwharf Quays where we looked around.  It was very quiet compared to what it is like most weekends.  We then had a very good lunch at Loch Fyne.  On our return I had a lie down as I was tired during which time two friends came to see Raymond.

Dr M rang at about 4.00 p.m. but the blood results hadn’t appeared on his screen which was unusual as they are normally processed very quickly.  He was considering what treatment I should have and he tends to think aloud.  I confirmed I am not happy with anything that would make the neuropathy any worse.  When you lose the feeling in your feet and hands it can be quite dangerous, it becomes impossible to write or use a computer, dressing is enormously difficult and when I had neuropathy with the CHOP-R chemo I had several bad falls as I couldn’t feel where I was placing my feet.

At all events I think I am having some sort of treatment tomorrow as Dr M’s assistant rang to say that a room has been booked so it sounds as if it is either a platelets transfusion or some sort of intravenous chemo.  As I shall be in hospital all day, I shall try to visit my mother.  She was supposed to be discharged on Sunday and each day it is a different story and different treatments are likely to be given.  At the moment she is likely to have gallstones removed on Thursday and be discharged on Friday.  Fortunately, she is in good spirits and she has the strength of character to cope with the ever-changing situation.


  1. I found your blog by random and have read several of your posts. It seems your having the same fight as one of my friends. You also both seem to be fighters.

    I wish you well.
    kind regards,

  2. Thank you so much for your comments. I do wish your friend well. It is a difficult fight but the support from other people really lifts my spirits.