I am as weak as a kitten so this blog will be short. Anna has been helping me to piece together the missing days when I was in intensive care. It looks as if my immunity suffered a spectacular crash after chemo. I think I had pneumonia followed by chicken pox which affected my brain and liver. Judging by my orange skin, my kidney function was also affected although this is now improving.
Undoubtedly, the drugs then administered kept me alive but the nightmares began literally and metaphorically. I thought for a while that only I knew about the filthy conditions, the appalling food and the quality of nursing care. There were exceptions particularly in intensive care but later I was reduced to a haunted shell. My family gradually became aware of the conditions but were torn between the importance of the clinical care and the degradation which was occurring. My good friend, our lay reader, also observed what was going on and one of the people she spoke to was Rev. W.
When I was strong enough to insist on discharging myself, I met opposition. Did I know my own mind? Did I know what was wrong with me? Had I thought about the effects on my family? I was bombarded with NHS jargon – palliative care, offers of nutritional advice – always for tomorrow never assistance for today. I insisted that Raymond should be telephoned to take me home. This put him in an impossible position as he knew I still needed acute clinical care but then everything all came together and his horror of what I was going through meant he came for me. At first I was told security would prevent my leaving and Raymond was not allowed to bring in my clothes.
Then we had to talk to the doctors to show that I was adamant. I don’t think I have ever been so quietly analytical and obdurate in my life. There were no arguments which could not be countered.
Alison, wish I could have seen you being so "quietly analytical and obdurate", I tremble just at the thought.
ReplyDeleteSupport and love Barbara
So glad you have escaped an awful situation, and hopefully your health will get a lot better now that you're in much better surroundings ... I had been wondering and worrying ... :)
ReplyDeleteI think you are very brave considering how weak you must feel. Good for Raymond. Tilly x
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