Saturday, 11 September 2010

Preparing for tomorrow

The more I think about it the more I consider that at least some of the unwanted activity in the lymph nodes is caused by the graft versus host disease. I am a little worried about the activity in my throat; that’s new in the first and second PET scans. I am hoping that by the time we return they will have lined up an ENT specialist, a dermatologist and a CT scan. Even with all of that lymphoma is so sneaky I don’t think we’ll ever be able to prove I’m well unless I survive for five years.

Kind friends and family are trying to find out how I’m taking all of this and it is difficult to say. When I am busy I am OK but at 3.00 a.m. it’s a little different. I think Dr Potter was a little concerned about how I would cope but so much has happened in the last few years that I have learned to make the best of things but it’s difficult for the family.

This afternoon I have been cooking again and preparing for tomorrow. We are taking a cooked gammon with us and I’m busy clearing out the fridge and using up various items. Ray has some running around to do today and is getting me a new phone. I dropped it in the hospital and it gave up the ghost on texting but the other day I dropped it and it shut down altogether.

Next I must work out all the tablets and creams to take with me. People tend to think that once a transplant has “taken” the rest is plain sailing. Some of the tablets I will have to take for the rest of my life; others are used as anti-rejection drugs in the hope of stabilising the graft versus host disease. It means I am totally dependent on this medication and I miss the more carefree days of the past.

It’s all in a good cause. Tomorrow we are off to France. I hope I shall see Anna before we go; she has a lot of mixed emotions at the moment and I want her to be able to really celebrate her success. It is so difficult for youngsters these days in times of recession to succeed but she certainly deserves it.

No comments:

Post a Comment